Help for individuals

Help for Individuals

Salt Skip News

Why all the importance on Salt and Sodium content?

Salt matters for two very compelling reasons:

  • it causes or aggravates over 20 salt-related health problems
  • at least 6 million Australians (half the adult population) have one or more salt-related health problems

The two most common and very serious health problems are:

  • pre-hypertension
  • hypertension

The two health problems with the most dramatic difference when skipping salt (both recovering within 4 weeks) are:

  • premenstrual syndrome
  • the vertigo of Meniere’s Disease

Salt Skip News, distributed in the ‘BP Monitor’, the Queensland Hypertension Association newsletter, is published bi monthly from February to December. It contains a variety of articles focusing on low salt. You can download the newsletters below:

Salt Skip News 165

Salt Skip News 166

Salt Skip News 167

Salt Skip News 168

Salt Skip News 169

Salt Skip News 170

Salt Skip News 171

Salt Skip News 172

Salt Skip News 173

Salt Skip News 174

International

International information regarding Meniere’s Disease

The following links to international web sites are provided for your additional information.

The Meniere’s Society United Kingdom
www.menieres.org.uk

Vestibular Disorders Association (USA)
www.vestibular.org

Meniere’s Disease Information Centre (USA)
www.menieresinfo.com

Dr Tim C Hain (USA)
www.dizziness-and-balance.com

BC Balance And Dizziness Disorders Society (Canada)
www.balanceanddizziness.org

Hearwell (New Zealand)
www.hearwell.co.nz

International Federation of Hard of Hearing People 
www.ifhoh.org

Meniere’s Association Italy
www.aimmitalia.it
This site is written in Italian. Should you wish to read it in English it is best to Google the site and click on the translate button.

Papers

Research reports and other papers

Papers

On this page you will find news about the activities of Meniere’s Australia Inc.

This will include events and activities, submissions to government, campaigns and discussion papers, new developments and fund raising activities.

All members are invited to send in their notices by emailing to: info@menieres.org.au
Any news-worthy items accepted.

Meniere’s Support Group of Victoria – Membership Survey 2006

In 2006 a research team from Chronic Illness Alliance conducted a survey of MSGV members which confirmed the vital role MA plays in helping people cope with Meniere’s.

Download the survey.

Senate Inquiry into Hearing Health in Australia

Submission from Meniere’s Australia Inc.

Managing Hearing Loss and Meniere’s disease and vestibular conditions in Australia requires:

  • Better identification and diagnostic skills of GP’s with regards to hearing loss and disorders of the ear.
  • Increased content regarding hearing loss and disorders of the ear in curriculum and professional training programs via the Division of General Practices.
  • Better referral networks to audiologists who specialise in Tinnitus, Meniere’s disease and other disorders of the inner ear as well as other organisations.
  • Recognition and financial support of the role organisations such as Meniere’s Australia, Better Hearing and State Deafness organisations in service delivery, providing peer support, counselling and case management.

To learn more about what Meniere’s Australia had to say download the submission.

Following the initial submission Meniere’s Australia was invited to speak with the Senators in Melbourne 2009. MA committee members John Cook, Lynn Polson, Rick Osborn and Neil Wingrave attended the meeting and spoke with the Senators about key issues for people with Meniere’s.

Read about what the Meniere’s team had to say to the Senators here.

Meniere’s Australia was delighted to learn that our efforts preparing papers and talking with various officers and members of Government – Federal and State has been successful with a Recommendation from the Senate with regards to Meniere’s, which forms part of the Senate Community Affairs References Committee’s Report titled Hear Us: Inquiry into Hearing Health in Australia. Tabled in the Senate on 13 May 2010:-

Recommendation 19
6.52 The Committee recommends that the Department of Health and Ageing works with Meniere’s Australia to identify opportunities for research into the prevalence of Meniere’s disease in Australia, rates of diagnosis, options for treatment and personal managment, and the socio-economic impact of the disease, including on the employment and lifestyles of those affected.

Consumer Advocacy & Support Groups Delivering Local Support in a National Framework to future generations of hearing impaired Australians

A Paper presented to 6th National Deafness Sector Summit, Sydney 23rd April 2010.

The author advocates adoption of a Holistic Model of Assistance to future generations’ of hearing impaired Australians through:-

Consumer Advocacy and Support Groups adopting a National Structure and Focus in delivering services locally and establishing clinical pathways to include a component of Consumer Advocacy and Support Group activity The experience and benefits of establishing a Meniere’s Australia out of State Support bodies is given as a case study.

Download the Report for further details.

Review of WA’s Current and Future Hospital & Community Health Care Services

‘Identifying any outstanding needs and gaps in health care services’

Support groups play a vital role in the community, by offering people with health (and mental health) issues an affordable and sustainable way to access information, help and understanding. In the current economic climate, with the rise in the occurrence of mental illness, and with an ageing population, the need for support groups is likely to increase.

To read more about what Meniere’s Australia WA Branch has to say about this issue download the report.

Health Technology Assessment Review

A submission about the opportunity for Australians to access the Meniett™ Pressure Pulse therapy in the management of Meniere’s disease.

For more information click here to read the full report.

What Causes Menieres Disease?

Causes of Meniere’s disease

Excess fluid in the inner ear

The exact cause of Meniere’s disease is not known. Research has linked the symptoms of Meniere’s to an excess of fluid in the inner ear that disturbs the balance and hearing organs.

The inner ear is composed of:

  • three semicircular canals and otolith organs – these control balance
  • the snail-shaped cochlea – this is the hearing organ

Within the cochlea there are two types of fluid separated by membranes:

  • endolymph – rich in potassium
  • perilymph – rich in sodium

In Meniere’s disease there is too much endolymph fluid in the inner ear. This condition of excess fluid is referred to as endolymphatic hydrops.

The pressure from this excess fluid interferes with the functioning of the delicate cells that are responsible for balance and hearing. Hearing loss and tinnitus (abnormal noise in the ear) are the result. As the disease progresses the cells become irreparably damaged.

Many people with Meniere’s can actually feel the fluid building up and the feeling of fullness this produces. Sudden movement of this excess fluid is the most likely cause of the attacks of vertigo (dizziness) that are typical of Meniere’s.

What causes the fluid build up?

The mechanisms that control the secretions of endolymph fluid are unknown. Many factors appear to cause endolymphatic hydrops (excess fluid) in the inner ear. The most common are:

  • Auto-immune reactions
  • Allergic responses
  • Autonomic nervous system imbalances
  • Blockages and/or damage to the endolymphatic structures
  • Dietary deficiencies
  • Viral infections
  • Vascular (circulation) irregularities

What is Menieres Disease

What is Meniere’s Disease?

A disease of the inner ear

Meniere’s disease is a condition in which there is an excess of fluid in the inner ear. The excess fluid disturbs the ear’s balance and hearing mechanisms and produces a range of symptoms:

  • vertigo (a form of dizziness where your surroundings appear to spin)
  • tinnitus (an abnormal ringing noise inside the ear)
  • fluctuating hearing loss
  • a feeling of pressure or fullness in the ear due to fluid build-up

Attacks of vertigo usually occur in clusters with varying periods of remission (from days to years) between attacks. Vertigo attacks can occur without any warning and you cannot predict how severe the vertigo will be or how long it will last.

Tinnitus, distorted hearing and pressure in the ear often occur in conjunction with the vertigo. In the early stages of the condition, hearing returns to normal levels following an attack, but as the disease progresses measurable and permanent hearing loss occurs.

Estimates vary but around 90% of people with Meniere’s have the disease in only one ear when first diagnosed. Around 50% of these may go on to develop the disease in both ears.

Who gets Meniere’s?

Meniere’s disease affects one in every 600 Australians. It appears that Meniere’s is diagnosed around late thirties to early fifties. It is uncommon for children to be diagnosed. Unfortunately this is a time of life when people are busy with family and careers.

Treatment

Currently there is no known medical cure for Meniere’s. The condition can however be managed to some degree through medication, diet, stress reduction, exercise programs, natural therapies and as a last resort, surgery.

There are treatment options for the acute attack of vertigo as well as options for the symptoms experienced and prevention of further attacks.

About Ma

Who is Meniere’s Australia?

Meniere’s Australia (MA)

Meniere’s Australia (MA) is a national non-profit, non-government organisation that aims to promote and facilitate the development of Australia-wide services and support for those living with Meniere’s disease and other vestibular conditions. Meniere’s disease is a chronic, incurable condition of the inner ear that produces a range of debilitating side-effects in affected individuals.

Meniere’s Australia offers a national forum for health professionals, individuals experiencing Meniere’s and other vestibular conditions, funding bodies and interested individuals to share information and resources. We welcome your involvement & support (see Membership).

The Vision of Meniere’s Australia is that all Australians with Meniere’s disease and other vestibular disorders will receive and have equal access to support services, information and personal support irrespective of geographical location.

At MA we aim to provide a high level of community support for people who have Meniere’s disease and other vestibular conditions by:

  • collecting and distributing information
  • raising the awareness of doctors and other medical professionals to the problems experienced by people with Meniere’s disease
  • counselling
  • increasing public awareness of Meniere’s disease
  • encouraging research into more effective treatment and a cure
  • providing the opportunity for members, their families and friends to meet in a supportive atmosphere

The Objects of the Organisation are to:

  • Actively assist sufferers of Meniere’s disease and other Vestibular Disorders and their families
  • Actively assist health professionals to understand the effects of Meniere’s disease and other Vestibular Disorders on the individual and the family
  • Facilitate the circulation, development, sharing and exchange of relevant research and resources about Meniere’s disease and other Vestibular Disorders
  • Access national, state an dlocal sources of funding
  • Establish a national body comprising:(i) Individuals with Meniere’s Disease and other Vestibular Disorders;(ii) Professionals with an interest and knowledge of Meniere’s Disease and other Vestibular Disorders(iii) Research and educational bodies and supporters;
  • Establish a national profile for Meniere’s Disease and other Vestibular Disorders
  • Increase the profile and knowledge of Meniere’s disease and other Vestibular Disorders throughout Australia
  • Raise public awareness of Meniere’s disease and other Vestibular Disorders and their effects on the lives of people;and
  • Co-operate with other national and international organisations sharing similar objectives and activities to achieve these Objects.

MA was formed by the Meniere’s Support Groups of NSW and Victoria, coming together to establish a national Meniere’s support service for all Australians living with Meniere’s disease and other vestibular conditions.

The Meniere’s Resource and Information Centre

As part of our ongoing efforts to gather and disseminate information on Meniere’s disease, the Meniere’s Resource and Information Centre maintains an extensive collection of information resources on Meniere’s Disease and related topics.

If you have Meniere’s, you may find such information an invaluable aid to understanding and managing your condition. Carers, families, friends and medical professionals may also find our information resources helpful. Our free information packs provide a good starting point for finding out more about Meniere’s.

If you are an MA member you can borrow resources from our library. If you can’t come into the Resource Centre we can post materials out to you. We also offer a complimentary membership pack of information resources if you choose to join MA.

Our Resource Centre also has a large selection of resources available for purchase. The Catalogue section of our site contains a catalogue of selected resources from our Centre, and order forms for purchasing them by post. MA members are entitled to a discount on some catalogue items.

MA counselling and referral service

Contact a counsellor

The following table lists contact details for MA counsellors.

Meniere’s Australia offer a confidential counselling service which is available to members and their families.

Our counsellors:

  • are members of MA
  • have first hand knowledge of Meniere’s
  • have undertaken a counsellor training course
  • can talk to members about problems or concerns they may be experiencing due to Meniere’s
  • can offer phone-based or written support

Counsellors may refer you to other community organisations, health professionals or government agencies for further assistance.

If you would like to join MA in order to access our counselling services you need to fill in a membership application form.

Name
Contact
Hours
Micky
1300 368 818

Face-to-face or phone counselling by appointment.

Phone +613 9783 9233 from outside Australia

Anne
(02) 6690 2528
Phone Counselling from 9am – 2pm & 4.30 pm – 6pm

Newly Diagnosed

Newly Diagnosed with Meniere’s Disease?

When experiencing symptoms of Meniere’s disease or when first diagnosed it is often quite a shock. You may feel overwhelmed and not sure what is happening or how you will manage.

Often it seems like your world is spinning out of control and it is not easy to accept that life as you knew it has changed. You are not alone. With help and support from health professionals, family, friends and Meniere’s Australia, you can learn to live confidently with Meniere’s.

Now that you have a diagnosis you can take steps to understand Meniere’s disease and learn to manage your symptoms and life. You can regain control.

Online Shopping

How to order resources from the catalogue

Our office will close on 18th December for the holiday period. Normal office hours will resume on Monday 11th January 2016.

If you order products online during this period, we will endeavour to post them to you as soon as possible upon our return.

View Your Order

If you place an order during this time, we will endeavour to post it to you as soon as possible upon our return. The Catalogue is broken up into 3 categories; Diet, Lifestyle and Medical. Each category can be accessed by clicking on its tab in the left hand yellow sidebar of this screen.

Each time you add an item to your order you will be redirected to this page to check your order.

You will see a table containing items you have ordered with: the item name, item type, price, quantity and total price.

To change the quantity of an item simply type the number of items you wish to order in the Qty box and then click the Update Order button.

To cancel your order click the Clear Order button. All items in your list will be removed.

If you wish to add more items to your order select the name of the category from which you wish to browse and click the Click to Order link to order additional items.

When you have finished browsing through the catalogue and your order is complete click the Continue to the Checkout link on the View Order page or the Checkout link on the left side of the page.

Ordering Offline

If you do not wish to use our online ordering system please contact us to request a printed catalogue and order form. The printed catalogue has a complete listing of all our resources.

You can post your order form to us with a cheque or money order to:

Meniere’s Information and Resource Centre
Phone: 1300 368 818 or (03) 9783 9233
Fax:(03) 9783 9208
Suite 4, Brockwood House, 424-426 Nepean Hwy
Frankston
Victoria 3199
Australia

Support Services

Support Services

If you have Meniere’s you may benefit from consulting with and learning from other people who have the condition.

For example, Meniere’s Australia (MA) offers:

  • a counselling and referral service
  • an information and resource centre
  • regular member meetings which feature guest speakers on a range of topics related to Meniere’s
  • opportunities to meet with other people who have Meniere’s or care for people with the disease
  • a members’ newsletter full of up-to-date information plus insights into how others experience and cope with the disease